HEAD2head™

• 

HEAD2head™ is a patient advocacy group offered by the HEADstrong Foundation that connects newly diagnosed patients with a network of patients and survivors of blood cancers to provide peer support, mentoring and guidance.

HEAD2head™ was originally conceptualized by HEADstrong founder Nicholas “HEAD” Colleluori, who from diagnosis was determined to learn as much as he could about the disease that he had. During his battle against non-Hodgkin’s Lymphoma, Colleluori recognized the importance of peer support and embraced the concept of becoming a patient advocate for blood cancer. During his inpatient treatments, Nicholas began to visit and counsel patients, many twice his age. He wanted them to see that regardless of the situation that there was always hope. He valued the importance of the smile and the ability to connect with people all going through the same thing.

“While we cared for Nicholas through every procedure and treatment, we cannot personally explain the feeling of receiving chemotherapy, or the experiences associated with this disease. Our new patient advocacy group is a personalized approach that nurtures the mental health of patients by connecting them with other patients and survivors of the disease.  We want people who are dealing with the stresses of a diagnosis of blood cancer to know that they are not alone in the world.” - Cheryl Colleluori, HEADstrong President

Championing the effort is Jessy Kyle, a three time survivor of Hodgkin’s Lymphoma and Joe Clifford, a survivor of Acute Lymphoblastic Leukemia.

“We believe that knowledge is one of the best weapons against cancer. In addition to learning from medical professionals, we feel that it’s extremely beneficial for a patient to talk to other patients who can relate. It is crucial for a current patient to engage with survivors so they know that their survival is indeed possible. Our hope is to help structure the Head2head program in a way that is easy for former patients and current patients to connect.” says Jessy Kyle and Joe Clifford, Patient Advocates

Like Jessy and Joe, many others are joining HEADstrong to help educate, encourage and mentor newly diagnosed patients of the disease.

If interested, please complete the below form and we will contact you as soon as possible.

1.	HSF has created the Program as a part of HSF’s charitable activities and has made the Program available to me as a free service, without expectation of compensation.  Accordingly, HSF may freely change, supplement, suspend or discontinue the Program at any time or from time to time, in HSF’s sole and absolute discretion.

2.	Either HSF or I may terminate my participation in the Program at any time, and for any reason.  If I choose to terminate my participation in the Program, I will use my best efforts to provide HSF with no less than two weeks’ prior notice.

3.	Any information about me, my medical condition or my course of treatment that I may communicate to Program personnel is communicated voluntarily and at my discretion and such information may be communicated to HSF staff members or representatives having a need to know such information in the course of administering or managing the Program or in connection with the conduct of HSF’s charitable activities.  Without limiting the foregoing, HSF will use reasonable efforts to treat such information as confidential and not disclose such information to third parties; provided, however, that HSF will have no liability whatsoever in respect of any disclosure of such information.

4.	I hereby release, indemnify and hold harmless HSF and its respective directors, officers, employees, volunteers, sponsors and representatives, from and against any claims causes of actions, suits, judgments, expenses and demands whatsoever arising directly or indirectly from my participation in the Program, including any claims relating to disclosure of information about me.

•